January 22, 2011
A Lamar couple is celebrating their daughter's second birthday.
Their little girl is suffering from an incurable muscular disease.
About 50 family and friends came out for the birthday party of Holly Tolson.
Holly's parents say she turned two on Wednesday and her birthday is a major milestone.
In 2009, doctors diagnosed Holly with spinal muscular atrophy or SMA.
That's a motor neuron disease which affects her ability to walk, talk, control her head, neck and swallow.
Her parents said, "We're proving the doctors wrong that we've come a long way since Holly's diagnosis we didn't think that we would make it to today. I don't know words can't describe how you feel about it making it to age two."
One in every 6,000 to 10,000 babies are born with SMA.
There is no cure for the disease, but the Tolson's aren't giving up.
They're organizing a benefit ride for Holly March 19 beginning at Doug's Harley Davidson in Florence.
The benefit ride is $20 per bike and $5 per passenger.
For more information on the ride call (570)-274-0263.
